So how does this happen? How does my baby turn 6? I still remember the day six years ago, two day labor. Drugs that did not work so I felt every second of his labor. Being told at 9cm that his head is too big we have to do a c-section. THANK GOD. By the end of day two you are begging for Mercy. Luckily those drugs worked. And than bringing this 8lb 1ounce baby home to a heat wave. Where from day one he refused to where clothes. Do NOT put socks on this child, he could pull them off in seconds flat and toss them. Where at two weeks he rolled over because he was determined to sleep on his belly. What can you do after a few days of fighting it, I gave in, if he could roll over I had to let it be. I was tired and needed sleep!
Ethan hit every milestone on time, he sat at 5 months, walked before his first birthday. Where at his first birthday he told everyone that he would be a big brother. He was potty trained before age two and just doing so well. Growing like crazy and talking up a storm.
But then his second birthday came and so did his 2 year check up complete with shots. He received nine shots that day to catch up from 18 months where I happened to have delivered Tucker so he didn't make it to the doctor until age 2. Where we played catch up. Knowing he had fevers and being cranky after shots we gave Tylenol before the shots hoping for the best. Who know those shots would change our lives? Who know?
By the time we got home that day from the doctor, he was cranky, he was fussy. and he had a fever. This continued for days and weeks. I would call the doctor and he said it was fine. Give more Tylenol. 14 days after the shots and still never returning to my old boy, his fever spiked, it hit 104 and he went into seizure. 911 was called and we headed to the hospital. Where we were quickly sent home, he has a fever, he probably has an infection take him to his doctor in the morning? They gave us more Tylenol and more Motrin and sent us on our way. So we went to the doctor the next day where we talked about febrile seizures. Where gut said no, but he was the doctor he knows what he is talking about right? So after a couple of hellish days of none sleep and screaming for hours on end, he calmed down and we were hoping Ethan was snapping out of it. Exactly 30 days later at 4am I heard Ethan's brother Tucker fuss a bit. So I got up to take care of Tucker and I heard an odd sound from Ethan's room. I went in and something was not right. I said "Ethan" and he went right into a seizure. So at 4am I pulled him out of his crib well Russell called 911 again. And off we went to the hospital again. Where we were home by 6am. And back into the doctors office at 8:30am. What is going on, where we talked yet again about febrile seizures?
So why won't the fever ever really go away? Why is he so cranky all the time, the screaming? He is not looking at us? Not sleeping? Oh he is just sick give more Tylenol and Motrin. He just had another febrile seizure. UGH! OK he is the doctor right? So 30 days later you want to guess what happened? The day before Halloween I was up in Olympia and I took Tucker with me, because Ethan was still sick and cranky. Where I get a call that Ethan has had another seizure. OK so why call 911 right? I call the doctor's office and told them about the seizure and they said there is a children's emergency room to take him there. OK we can do that? So I race home and pick up Ethan and Russell and we head on down. The doctor comes in and takes one look at him and Say's he has an infection I say we know. He says what did your doctor give for it. I said nothing. I have been told by four doctors because they don't' know what kind of infection it is they will not treat it. Has there been any testing? No I say.
The doctor gets pissed, he gives us some antibiotics and says you need to get to a neurologists asap. He said he would take care of it and sent us home. I guess he called our doctor that night and they had words. Because I got a call first thing in the morning from the neurologists office to come in the next day. I'm like boy that was the fastest referral we have ever had? They said they got the paperwork the night before from our doctor.
Well we put Ethan through all that testing and nothing. According to that doctor he has febrile seizures. And she discovered how much in medical bills we have and so she arranged for some drugs for us to stop seizures if they go longer than five minutes. And lucky for us she did not charge us and gave us our co-pay back.
So the antibiotics kicked in and the fevers finally went away. Ethan being sick was gone. But what we were left with was hell. Hell I would not wish on anyone!
Our Ethan would not sleep, he would scream for hours on end. He stopped eating, well unless if it was bread or milk. He would flap his arms and spin. He would run around the house for hours. Furniture jumping OMG. He would take off from the couch and aim for the wall, bounce off and do it again. It was the funniest thing ever.
Countless trips to the doctor asking for help. And being told it's adhd and we should put him on drugs. Me saying no and leaving with no help. Me going back because after all he is the doctor right? And me being told it's adhd and he needs drugs. Me saying no and leaving. Me BEGGING for help and me being told he really needs drugs are you ready for them? I would say no and leave.
It was a two year battle, two years of non sleep. It was two years of HELL. And somehow in the mix of this we had baby Cole. But you start to feel like a bad mom when Ethan takes up so much of your time. He had to go back into diapers. If he didn't have your full attention when he needed it, than watch out. For pooping we would have to sit in the bathroom for hours holding his hand. The reflux was so bad he would cough for hours on end at night. Have I mentioned the no sleep part? Doctor put him on reflux drugs and they were not working. A year later, I had a gut feeling I needed to look into the reflux drugs. And boy was I shocked! A child should not be on them for longer than a year. He was coming on one year and they have been no help. So I go back to the doctor and ask to take Ethan off of them. He said no but lets have him scooped. Sure why the heck not right? We go the GI doctor and she scopes him and sends us home saying all looks good, but to double the medicine. My gut said no, I left him on his old dose.
So two months after his scope we had a bad day. We had the worse day ever. I had all three boys, home alone. And any sanity I had was gone. I don't think I had one quiet moment. And than well Ethan was furniture jumping he fell and hit the floor, he hit is hard and I thought he broke his arm. And there I am trying to hold him and of course you can't touch him. I had not been able to hold him for two years why start now? I had had it, I was in tears, I wanted, no I needed answers and I was out to get them. I put all kids to bed at 7:30 knowing the bedtime fight would happen, but I needed computer time. That was it. And that was the night I got smart.
I first looked into adhd drugs. OMG I could not do that to my son. I typed in naturally adhd and Celiac disease came up. OMG everything mentioned was Ethan. I was in shock, he was eating two loaves of bread a day and nearly a gallon of milk and that would be it. OMG. He was dropping weight, he was not growing, he was the same size as his younger brother. OMG. But I kept researching and found going dairy free helps as well.
So I got up first thing in the morning and called the GI doctor and got the nurse who read me Ethan's chart. I asked for the samples to be tested for Celiac disease. She looked over his chart and finally read me the doctors private notes, She saw Celiac Disease. I was dumbfounded. I was shocked. I asked why didn't the doctor tell me? Um, because the lab report came back negative. Oh believe me I am still ticked. But yet I finally had answers. We started to take away gluten, I have to tell you three days after saying OOPs the store didn't have any bread today. He slept. I put him to bed at 8pm and by 8:05 he was out. That has not happened in two years. I was like now what do I do with my evening? I'm normally doing the bedtime battle. You all know that battle!
Within days he stopped needing help pooping. He was fully potty trained. With removing dairy, he started saying words. He started looking at us. I could touch him. It was not until we fully went soy free we got him back. The arm flapping stopped, the furniture jumping stopped, the screaming stopped. He was talking like crazy and would not shut up. We had eye contact. We were getting our boy back. After a ton of research I went and found a natural doctor. She helped with the diet, we got a heavy metal test, we got a yeast test, allergy testing. The works. She was a God Sent. Because after my research we all know Ethan had autism.
Fast forward to my baby turning 6. I have to say after two very long years of working hard on him, he is fully recovered. We are gluten, dairy, soy, crap free. We are also 95% corn free. Along the way we have found he is very allergic to gluten, mushrooms and sulfur. He went from almost being kicked out of preschool to being a smart boy who I want to try and send to private school. Because I can not keep up. He now does Karate and is currently an orange yellow belt. He is sweet and kind. He is very loving. We got very lucky we know this. We don't take a day for granted with him. We lost two years with him. We will never get those two years back. But we have him now and all we can do is move forward.
So with the help of a team of four doctors, supplements, diet, speech therapy. We have him back.
So here is what we think happened. His two year shots gave him an infection which lead to seizures, once we got the seizures under control the Celiac disease came out. Because we did not know about the Celaic for two years, he also fell into allergy induced autism. Which that explains why the diet worked so well on him.
But honestly as we look back and knowing how hard we worked and where we are now. We are amazed. No I would not wish this on anyone. But I do like the road we are on now. This travel has really opened my eyes. I get the joy of cooking gluten free. I started gardening and canning just so I know what is in my son's food. But on the other hand saddled with medical bills and I don't know how we are able to keep our house from month to month. But I have my son back.
And I got the joy of seeing my son turn 6 today. Where he invited his preschool class and about 1/2 showed up and had fun. He had so much fun turning 6, and Ethan is so looking forward to kindergarten. Now if I can just figure out where to send him right?
Here is Ethan sneaking a birthday cupcake. Just don't tell him they are full of zucchini!
Here is my little place in the world to keep up with family and friends,glow about my three very cute boys, and keep up with our Gluten Free lifestyle. Come in and look around and join me as a follower. I'll post recipes and brag on my boys and even share my goats with you!
Saturday, June 27, 2009
Thursday, June 25, 2009
Canning 101
OK I'm going to attempt to do a Canning 101 using Strawberry Jam. Honestly it's easy as one, two, three.
First go strawberry picking. This is a photo of a Strawberry from our bed. So far we have picked enough to make three batches of jam and one batch of Strawberry Lemonade. Num, Num. Pick enough to make 5 cups crushed. I think about 6 cups or so is good.
Now take the time to pick off the tops and to wash the Strawberry's.
First go strawberry picking. This is a photo of a Strawberry from our bed. So far we have picked enough to make three batches of jam and one batch of Strawberry Lemonade. Num, Num. Pick enough to make 5 cups crushed. I think about 6 cups or so is good.
Now take the time to pick off the tops and to wash the Strawberry's.
Next I toss them into the food processor for a few seconds. I leave them kinda chucky. I than measure out one cup at a time and dump into a big stock pan. Until I have five cups.
I than add 1/4 cup lemon juice.
I than mix in the pectin, this is the one I used this time. The recipe I used comes in the box.
I than mix in the pectin, this is the one I used this time. The recipe I used comes in the box.
I than bring to a full rolling boil for about a minute, really not long.
I than add in the sugar, I have changed over to organic this year. Yes more pricey. But worth it to me. I get my bags at Costco where it's much cheaper.
Put in 7 cups of sugar. Yes, really. Where I live I can get away with using 5-6 cups of sugar and it sets just fine. But if you live where it's hot I would not try this.
Now boil hard for 1 minute. If you wish to skim off foam go for it. I do not do this.
Well it's boiling get your jars ready. I normally have them sitting in hot water. A trick is to have the lids and rings sitting in hot water in a crock pot.
Well it's boiling get your jars ready. I normally have them sitting in hot water. A trick is to have the lids and rings sitting in hot water in a crock pot.
When done pour into hot jars leaving 1/4 to 1/2 inch space. I normally fill to the first line. If you look at a jar you will see what I'm talking about.
Once all jars are filled put on the two piece (I didn't take a photo, oops) But a top and a ring and tighten it down. Hand tight.
They say to bwb for 5 minutes I actually do 10. Now bwb is easy, Boil Water Canner. You put the jars in and make sure water covers the top of the highest on in there. About an inch over is what you want. You than put the lid on and turn it on high. And you wait for it to boil. When it starts to boil is when you start the timer. You than time for ten minutes. Once the timer goes off, I turn off the heat, I remove the top and let it cool a bit. About ten minutes or so later I come back and take the jars out and set them on the dining room table to cool over night. You want to set them in a place they will not be touched for 12-24 hours. When 24 hours is up you can take off the rings and test the seal if you can pick it up by the seal and nothing happens you have done good.
The pinging sound you hear as you take the jars out of the canner is a good sounds. They are sealing. Don't panic if all don't ping, some seal without the ping. Also your jam may not set up right away. It can take up to two weeks to set. I know that has happened to me.
Here is the ending result. Some nummer Strawberry Jam you can put on your shelf that will keep up to three years. And you know what is in your jam. How cool is that?
Here is the ending result. Some nummer Strawberry Jam you can put on your shelf that will keep up to three years. And you know what is in your jam. How cool is that?
So did I miss anything? Do not double recipes. One batch at a time. If you do the pectin verses sugar may be off and have trouble setting. Anybody else have any questions?
And yes I will do a pressure canner one as well. In fact I'm canning chicken right now. Busy, busy...
Monday, June 22, 2009
OMG! 7ft Dehydrator
Yes, I'm serious. It's a seven foot dehydrator. It will be in our house by the end of tonight. Now you say why does one need a seven foot dehydrator? Well um, why not?
I am so stinking excited. I will be drying until the cows come home.
This is hand made, it was made by the Grandfather of the guy we are getting it from.
Now when I update my garden photos you will see why this little baby will come in handy around here.
I am so stinking excited. I will be drying until the cows come home.
This is hand made, it was made by the Grandfather of the guy we are getting it from.
Now when I update my garden photos you will see why this little baby will come in handy around here.
Sunday, June 14, 2009
My Baby is Potty Training!
Well it's time to potty train the baby. I ran up to goodwill this week and bought a potty chair. I came home with it and my son could not get his diaper off fast enough. He sat right down and used it. And then would not touch it for the rest of the night. Nice right?
Well today a few days after this shot, tonight I decided it was time to go full blown potty training. Luckily that is all on tape, and no I will not be uploading it to the site. But we had a nice 30 minute fight, he wanted a diaper I would say no, I would say use the potty he would say no. You know how it goes right?
Ethan came inside and had to use the bathroom so I took Cole's potty chair and placed it in front of Ethan and there you go he peed in the potty. And than right before bed we got him to pee again.
So here we go down the road of potty training for our goal of no diapers.
Well today a few days after this shot, tonight I decided it was time to go full blown potty training. Luckily that is all on tape, and no I will not be uploading it to the site. But we had a nice 30 minute fight, he wanted a diaper I would say no, I would say use the potty he would say no. You know how it goes right?
Ethan came inside and had to use the bathroom so I took Cole's potty chair and placed it in front of Ethan and there you go he peed in the potty. And than right before bed we got him to pee again.
So here we go down the road of potty training for our goal of no diapers.
The Circus Is In Town
Thursday, June 4, 2009
Mommy Moment
You know when you have those Mommy moments and you can not believe you did that? I seem to have them daily, but yesterday I had one out in public.
So I was on my own with three kids. I had a backyard circus to get to. So with it being hotter than heck (90 degrees). I got the kids dressed, feed, found a clown costume and got that into the van. I packed the camera and got going. Of course I forget this and that and run back into the house a few times. You all know how it goes.
We get on the road and head for the circus. We get there pretty early and I take three kids out of the van and gather up our stuff and off we go. I set up the chairs and blanket and go in to dress a clown. That went well.
I head back outside to sit down to wait for the show to start. About 10 minutes out from the show I look over at my middle son Tuck and realize he is sitting there in his under ware. Can we say mommy moment? How does a child get out of a house with just under ware on?
Oh Boy. Because I have three boys and they do not clean out my van I was pretty sure I had pants in the van for him and sure enough I did. Gee Whiz. I find it funny no one mentioned anything. Not even my mother? I didn't see any odd looks? Maybe with me they are use to it?
And no I will not be posting that photo. But look for circus photos to be coming soon.
So I was on my own with three kids. I had a backyard circus to get to. So with it being hotter than heck (90 degrees). I got the kids dressed, feed, found a clown costume and got that into the van. I packed the camera and got going. Of course I forget this and that and run back into the house a few times. You all know how it goes.
We get on the road and head for the circus. We get there pretty early and I take three kids out of the van and gather up our stuff and off we go. I set up the chairs and blanket and go in to dress a clown. That went well.
I head back outside to sit down to wait for the show to start. About 10 minutes out from the show I look over at my middle son Tuck and realize he is sitting there in his under ware. Can we say mommy moment? How does a child get out of a house with just under ware on?
Oh Boy. Because I have three boys and they do not clean out my van I was pretty sure I had pants in the van for him and sure enough I did. Gee Whiz. I find it funny no one mentioned anything. Not even my mother? I didn't see any odd looks? Maybe with me they are use to it?
And no I will not be posting that photo. But look for circus photos to be coming soon.
The Diner
The Diner. OH BOY.
Now I have to say last year about this time, maybe more Spring than Summer I got some energy. I started feeling good and before I know it I had more energy than I knew what to do with. So with our love of collecting wood (anytime something is posted on free cycle we jump all over it). And we had pile after pile of all sizes and shapes of wood. So I went out last spring and just up and built the boys a Club House (Photo to come) We finished up before Summer started (although hubby has not roofed it yet). And we spent the summer playing and working in the Club House.
So this year I wanted to add to the Club House and the boys requested a Diner. Which is great, because last year on a very rainy day I stopped at a garage sale and picked up some kids cabinets, stove and fridge. I packed my van full for only 5 bucks. They need work, a new coat of paint and some hinges. So the other week I got outside and started building the Diner. I thought OH it would be so easy to build out of pallets? NOT! It is very hard to do with they are all different sizes and shapes. So as you can see the back wall is pallets and than I gave up and went to the 2x4's we had on hand. The floor came from Hubby's work for free, he often brings home odds and ends they would just toss. And this is working to be a good floor. So as you can see in the photos I have three walls up. Actually I have four walls up but have not updated my photos yet.
The floor in pieces.
Now I have to say last year about this time, maybe more Spring than Summer I got some energy. I started feeling good and before I know it I had more energy than I knew what to do with. So with our love of collecting wood (anytime something is posted on free cycle we jump all over it). And we had pile after pile of all sizes and shapes of wood. So I went out last spring and just up and built the boys a Club House (Photo to come) We finished up before Summer started (although hubby has not roofed it yet). And we spent the summer playing and working in the Club House.
So this year I wanted to add to the Club House and the boys requested a Diner. Which is great, because last year on a very rainy day I stopped at a garage sale and picked up some kids cabinets, stove and fridge. I packed my van full for only 5 bucks. They need work, a new coat of paint and some hinges. So the other week I got outside and started building the Diner. I thought OH it would be so easy to build out of pallets? NOT! It is very hard to do with they are all different sizes and shapes. So as you can see the back wall is pallets and than I gave up and went to the 2x4's we had on hand. The floor came from Hubby's work for free, he often brings home odds and ends they would just toss. And this is working to be a good floor. So as you can see in the photos I have three walls up. Actually I have four walls up but have not updated my photos yet.
The floor in pieces.
The floor again in pieces. Me thinking how the Heck do I connect them?
To Dah the floor put together with screws, nails and anything else I could find.
The pallet back wall. As a note I suggest laying out your wall first. I did not I just grabbed a piece and nailed and yeah it didn't go so will. It actually took two days to get this wall up alone.
Stay Tuned as I have any spare time I will be out building...Spare time what is that?
And if you notice, NO I don't use a level. What is the fun in that?
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